Advancing Treatment for Calcium‑Sensing Receptor Disorders
The Australian patient organisation for non‑surgical genetic hypoparathyroidism and Autosomal Dominant Hypocalcemia Type 1 (ADH1) caused by CASR gene mutations. Funding breakthrough calcilytic research. For the first time, treating the underlying cause — not just the symptoms.
All donations over $2 are tax‑deductible | ACNC Registered | DGR Endorsed
“Living with a CaSR disorder means managing invisible symptoms every day — fatigue, brain fog, muscle cramps — while explaining to doctors why standard calcium supplements aren’t enough. For the first time, there is a drug in late‑stage trials that targets the actual cause. That’s why this organisation exists: to make sure Australian patients aren’t left behind when these treatments reach approval.”
How We Make a Difference
CaSR Patient Support unites patients, researchers, clinicians, and policymakers to advance treatment for non‑surgical genetic hypoparathyroidism and ADH1 caused by CASR gene mutations.
Patient Resources
Guides, fact sheets, and support for patients and families living with non‑surgical genetic hypoparathyroidism and ADH1 caused by CASR mutations.
Learn MoreResearch & Progress
Tracking encaleret and the calcilytic drug pipeline — with positive Phase 3 CALIBRATE results reported October 2025 — from bench to bedside for ADH1 patients.
Learn MoreCampaigns & Advocacy
Driving TGA evaluation and PBS listing of calcilytic therapies, engaging government, and campaigning for treatment access in Australia.
Learn MoreSupport Our Journey
Your tax-deductible donation funds patient advocacy, research partnerships, and awareness campaigns. Together, we can accelerate access to treatments that address the underlying cause of CaSR disorders.
Donations of $2+ are tax‑deductible • DGR Endorsed
Led by Experts, Driven by Patients
Our committee brings together clinical expertise, financial governance, and lived patient experience.
Small Amounts. Sustained Impact.
A monthly donation creates reliable funding for ongoing advocacy, patient resources, and research partnerships. Join our community of sustaining supporters.
Funds regulatory submissions to government decision‑makers
Sustains medically reviewed patient information resources
Supports TGA evaluation and PBS listing advocacy campaigns
