Get Involved
Every voice, every action, every contribution brings us closer to better treatments.
Share Your Skills
We’re a volunteer‑run charity and welcome people with diverse skills. All roles are flexible and remote‑friendly.
Medical Advisory Board
Clinicians and researchers providing scientific guidance on CASR‑related conditions and treatment access.
Digital Marketing
Social media, content creation, and digital campaigns to build awareness for rare disease advocacy.
Web Design
Helping maintain and improve our online presence so patients and families can access the information they need.
Administration
Governance support, document management, and organisational coordination behind the scenes.
Grants & Funding
Researching, writing, and managing grant applications to secure funding for programmes and research.
Lobbying & Advocacy
Engaging government representatives and regulators to advance treatment access for ADH1 patients in Australia.
Corporate Partnerships
Align your brand with meaningful impact in the rare disease space.
Why Partner?
- Support rare disease advocacy in Australia
- Brand alignment with a registered charity (ACNC)
- Employee engagement and purpose‑driven culture
Partnership Types
- Sponsorship
- Pro‑bono professional services
- Employee volunteering programmes
- Matched giving
Spread the Word
You don’t need a budget to make a difference. Help us reach more patients and supporters.
Share on Social Media
Follow and share our posts. Use #Hypoparathyroidism and #RareDisease to connect with the global community. Join #WorldHypoparaDay every June 1.
Tell Your Story
Patient stories drive change. Sharing your experience helps other patients feel less alone and strengthens our advocacy efforts.
Host an Awareness Event
Organise a morning tea, information session, or community event. We can provide resources and guidance to help you plan.
CaSR Ambassador Programme
Ambassadors are the public face of CaSR Patient Support in their communities.
Share Information
Distribute educational materials and raise awareness of CASR‑related conditions in your network.
Connect Patients
Help newly diagnosed patients find our resources, support channels, and community.
Speak at Events
Represent the patient perspective at conferences, forums, and community gatherings.
Amplify Campaigns
Champion our advocacy campaigns and help them reach a wider audience.
Training and resources are provided to all ambassadors.
Your Support Powers Real Change
Whether it’s a one‑off gift or a monthly commitment, your tax‑deductible donation directly funds the advocacy, research partnerships, and patient resources that drive treatment access forward.
Funds regulatory submissions quarterly
Sustains patient information resources
Supports TGA & PBS advocacy campaigns
